About Me
I am married to the love of my life, the best man I have ever known. Before being diagnosed with ALS, I loved my job teaching English. Now I enjoy writing, sharing stories on my blog, and working toward becoming a published author. Most important, though, I hope to do a significant amount of good in the world.
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About the Blog
My blog's name is in tribute to Meg Rosoff's novel, How I Live Now, the ultimate tale of resilience and determination. Just as the main character Daisy learns the true nature of loss (“If you haven't been in a war and are wondering how long it takes to get used to losing everything you think you need or love, I can tell you the answer is no time at all"), but never gives up, claiming, "Fighting back is what I've discovered I do best.” I plan to use this blog to chronicle my own battle and connect with other ALS warriors.
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About My Heroes
At Providence ALS Clinic, the gang gets together: doctors, nurses, and experts from the ALSA who keep me doing what I love. Because of them, I am constantly
learning to use new techniques for daily tasks and meeting resource experts to develop a care plan. On the homefront, my husband Evan, my family, friends, and caregivers show me love, protect my dignity, and inspire me to fight. |